Young adults' reasoning for involving a parent in a genomic decision-making research study. Journal of Genetic Counseling. 2024; 33:653-665.
.Measure of Caregiver Attention-Deficit/Hyperactivity Disorder Knowledge Is Responsive to Decision Aid on Treatment for Attention-Deficit/Hyperactivity Disorder. Academic Pediatrics. 2024; 24:417-423.
.Patient Preferences in Diagnostic Imaging: A Scoping Review. The Patient: Patient Centered Outcomes Research. 2023; 16:579-591.
.Adolescents' and Parents' Perspectives on a Novel Decision-Making Process for Return of Results in Genomic Research. Journal of Empirical Research on Human Research Ethics. 2023; 18:278-283.
.2023; 11:253-261.
. Can Sharing Improve Caring? A Call to Prioritize Shared Decision Making in Pediatric Pain Management. Clinical Practice in Pediatric Psychology.Providers' Perspectives on Decision-Making About Care for Transgender Youth. Transgender Health. 2023; 8:337-343.
.Comparative Effectiveness of Anti-TNF in Combination With Low-Dose Methotrexate vs Anti-TNF Monotherapy in Pediatric Crohn's Disease: A Pragmatic Randomized Trial. Gastroenterology. 2023; 165:149-161.e7.
.Supporting Gender-Related Medical Decision Making for Transgender and Gender-Diverse Individuals: A Scoping Review. Transgender Health. 2023; 8:113-123.
.Decision Support Needs for Transgender and Gender-Diverse Youth and Families: A Patient-Centered Needs Assessment. Journal of Adolescent Health. 2023; 72:452-459.
.2023; 1:100767.
. P695: Adolescents’ state anxiety and decisional regret one week after learning carrier results for autosomal recessive disorders.Developing video education materials for the return of genomic test results to parents and adolescents. PEC Innovation. 2022; 1.
.Pilot trial of iBDecide: Evaluating an online tool to facilitate shared decision making for adolescents and young adults with ulcerative colitis. Health Expectations. 2022; 25:3105-3113.
.Pediatric Caregiver Version of the Shared Decision Making Process Scale: Validity and Reliability for ADHD Treatment Decisions. Academic Pediatrics. 2022; 22:1503-1509.
.iBDecide: A web-based tool to promote engagement in shared decision-making among adolescents with ulcerative colitis. Patient Education and Counseling. 2022; 105:1628-1633.
.Decision making about anti-TNF therapy: A pilot trial of a shared decision-making intervention. Patient Education and Counseling. 2022; 105:1075-1081.
.Intergenerational Decision Making: The Role of Family Relationships in Medical Decision Making. MDM Policy and Practice. 2021; 6:23814683211039468.
.Integrating shared decision making into trial consent: A nested, cluster-randomized trial. Patient Education and Counseling. 2021; 104:1575-1582.
.Use of language in the medical decision-making process for biologic therapy: Youth and parent perspectives. Child: Care, Health and Development. 2021; 47:208-217.
.The Gray Zone: Adolescent and Young Adult Decision Support Needs for Ulcerative Colitis. MDM Policy and Practice. 2020; 5:2381468320940708.
.Is sharing really caring? Viewpoints on shared decision-making in paediatrics. Journal of Paediatrics and Child Health. 2020; 56:672-674.
.Shared Decision Making in Gastroenterology: Challenges and Opportunities. Mayo Clinic Proceedings: Innovations, Quality and Outcomes. 2020; 4:183-189.
.To reach the team at the Decision Making Research Lab, contact Ellen Lipstein, MD, MPH:
Email: ellen.lipstein@cchmc.org
Phone: 513-803-1626