Rubinstein-Taybi Syndrome
Patient and Family Resources

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Rubinstein-Taybi Syndrome Resources

Our patient and family resources provide information and support for you and your family throughout your journey with Rubinstein-Taybi Syndrome at Cincinnati Children's.

Rubinstein Library

The Rubinstein Library at Cincinnati Children's provides extensive health-related information on developmental and behavioral issues and related children’s health conditions.

RTS-OKI (Ohio, Kentucky, Indiana) Support Group

This group gathers quarterly and is free to any child or individual who has RTS, and their family members and caregivers.

The purpose is to provide families with timely information and education to foster a good life in the community.

For more information, contact our Family Support Coordinator at 513-636-4723 or rts@cchmc.org.

University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD)

The UCCEDD provides resources, support and opportunities for education and recreation for individuals with Rubinstein-Taybi Syndrome and their families.

Prepare for Your Visit

Child Life.

Child Life

We work with patients of all ages in different medical settings to help support emotional safety and normalize the process of receiving medical care.
Concierge Services.

Concierge Services

Traveling? Concierge Services can help arrange your transportation, lodging and entertainment needs while you are here.
Family Resource Center.

Family Resource Center

We provide space to read, catch up on work, grab a cup of coffee or play a game with your child.
Caren App.

Cincinnati Children's App

The Cincinnati Children's smartphone app is a digital concierge tool that simplifies your visits to Cincinnati Children’s Burnet and Liberty campuses.
MyChart.

Getting Started With MyChart

Manage your child’s medical information and appointments with MyChart, our electronic medical record. Learn how to enroll or log in.
Patient Resources at Cincinnati Children's.

View All Patient Resources

Explore the wide-ranging resources Cincinnati Children's offers its patients: before, during and after your visit.
Adaptive Care.

Cincinnati Children's Health Library

Cincinnati Children's offers a Health Library with topics on general health and wellness, as well as condition-specific information and guidance.
Ongoing Support Resources.

Ongoing Support Resource Directory

Cincinnati Children's has compiled resources to provide information, services and support from trusted sources for you and your child throughout their healthcare journey.
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