Rare Genetic Disease Program
Patient and Family Resources

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Rare Genetic Disease Resources

Our patient and family resources provide information and support for you and your family throughout your journey with the Rare Genetic Disease Program at Cincinnati Children's.

Prepare for Your Visit

Child Life.

Child Life

We work with patients of all ages in different medical settings to help support emotional safety and normalize the process of receiving medical care.

Concierge Services.

Concierge Services

Traveling? Concierge Services can help arrange your transportation, lodging and entertainment needs while you are here.

Family Resource Center.

Family Resource Center

We provide space to read, catch up on work, grab a cup of coffee or play a game with your child.

Find Accommodations.

Find Accommodations

We partner with many Cincinnati hotels to offer discounted rates to families who live out of the area.

Pay Your Bill.

Billing and Insurance Information

Pay your bill online or over the phone, and find information on insurance and financial support.

Patient Resources at Cincinnati Children's.

View All Patient Resources

Explore the wide-ranging resources Cincinnati Children's offers its patients: before, during and after your visit.

Adaptive Care.

Cincinnati Children's Health Library

Cincinnati Children's offers a Health Library with topics on general health and wellness, as well as condition-specific information and guidance.

Ongoing Support Resources.

Ongoing Support Resource Directory

Cincinnati Children's has compiled resources to provide information, services and support from trusted sources for you and your child throughout their healthcare journey.

Additional Rare Genetic Disease Resources

Meet the Team