Coronavirus (COVID-19) Information for Epidermolysis Bullosa Patients

Appointments and Rescheduling

During the national health emergency due to the novel coronavirus (COVID-19), our monthly interdisciplinary epidermolysis bullosa (EB) clinics and non-urgent in-person visits are suspended.

This decision coincides with national and state recommendations to limit patient exposure to medical settings for non-urgent matters.

If you or your child has an appointment in the next several weeks, the Epidermolysis Bullosa Center will contact you to reschedule your visit.

Although most of the EB team is working remotely, we are still available for your questions or concerns. We will offer you the opportunity for a voice or video visit (telemedicine). We are always available to you for any medical emergency.

Our telephone number is 513-636-2009.

Risks to Patients with EB

In general, you or your child’s risk from coronavirus is equal to that of other people. However, we believe that if you or your child has associated severe, chronic conditions that impact your general health, you or your child could belong to a more high-risk group for more severe complications of this viral infection.

Careful discussion with your physicians about each individual case is the best advice that we can give. Contact your local provider if you or your child has symptoms of COVID-19 infection or has been exposed to someone known to have it.

Surgical Procedures

Our hospital policy is to postpone all elective surgery until the national emergency has been lifted. You will be rescheduled as soon as possible. Should you have urgent needs, contact the EB Center or your surgeon.

Medications and Wound Care Supplies

Contact the EB Center for refills of medications and/or wound care supplies that you need, and we will take care of these requests as usual.

Thank you for your understanding in these difficult times. All of us in the EB Center wish you good health and a speedy resumption of your normal activities.