What will happen in the study?

The study staff will ask you about your or your child’s current and past medical history at your first scheduled clinic visit after agreeing to participate in the study and then ask about medical conditions, surgeries, hospitalizations, and the status of your or your child’s bladder program and mobility methods at each follow-up visit. This is the same type of information we would want to know to provide care to your child in our Center for Spina Bifida.

The information may be collected before, during, or after the clinic visit. If all of the information is not collected at your clinic visit, we may contact you by a telephone to complete collecting the information about your or your child’s medical history. We would like to see you for your already scheduled Center for Spina Bifida clinic visit at least once a year.

The data will be stored at Cincinnati Children’s and may be used for local research with your consent.

You will be given a consent form that thoroughly explains all of the details of the study. A member of the study staff will review the consent form with you and will be sure that all of your questions are answered.