What will happen in the study?

Participation in this study will involve the collection of samples, which will be coordinated and obtained during you or your child’s scheduled clinic visit or procedure. If you would prefer to come in at another time to participate, a separate research visit can be schedule to collect the samples. Once the samples have been obtained there are no additional follow-up research visits planned for this study.
Participants’ privacy and confidentiality will be protected carefully. Donors’ identities will not be revealed to the researchers using the samples. All samples will be de-identified and stored for future use in the Heart Institute BioRepository (HIBR) at Cincinnati Children’s.

You, as a parent interested in having their child participate, will be given a consent form that thoroughly explains all of the details of the study. The form covers all of the procedures, the risks, the benefits, the pay, who to contact with questions or concerns and more. A member of the study staff will review the consent form with you and will be sure that all of your questions are answered.