Children at least 6 months old, teens and adults who have been diagnosed with CF or a CF-related disorder and who have at least one rare or unidentified mutation in the cystic fibrosis transmembrane conductance regulator (CFTR) gene may be eligible to participate. Participants should not have a severe nasal disease or an active infection.
This study includes one study visit to Cincinnati Children’s, or if you live outside of the area, we will work with you to arrange a visit to a doctor or Cystic Fibrosis Center where a trained person can obtain a nasal sample from you.
These are the things that will happen in the study:
You will be given a consent form that thoroughly explains all of the details of the study. A member of the study staff will review the consent form with you and will be sure that all of your questions are answered.
Being in this study may not help you right now. When we finish the study, we hope that we will know more about using nasal cells to test new medicines and treatments, as well as to study lung diseases. This may help people with lung diseases in the future.
Participants will receive $20 for time and effort for being in this study.
Alicia Ostmann
613-636-7706
alicia.ostmann@cchmc.org
Pulmonary Medicine
Cincinnati Children’s Hospital Medical Center
3333 Burnet Ave.
Cincinnati, OH 45229-3039