Chronic Condition Remote Survey Study for Parents and Their 12- to-17-Year-Old Adolescents With a Recent Treatment Change

Why are we doing this research?

Cincinnati Children's is conducting a survey study (can be completed remotely and takes about 10 minutes) that looks at what parents and adolescents think about medical decision making.

Who can participate?

Parents and their adolescents 12 to 17 years old who are receiving care for a chronic condition and had or discussed a treatment change (including changing, starting, or stopping a medication) during a recent visit may be eligible to participate. (Chronic condition examples include ADHD, asthma, eczema, IBD, diabetes, etc.)

Conditions

ADD / ADHD
Asthma
Chest and Lungs - Respiratory Tract
Chronic Pain
Dermatology
Diabetes
Gastroenterology, Hepatology and Nutrition

What will happen in the study?

Participating in this research study will involve you and/or your child completing a survey. Here are the survey details:

The survey which will take no more than 10 minutes can be completed via computer, phone or tablet using a link that will be emailed or texted to you.
Once the research team finishes collecting surveys, all identifiers will be removed. This means no one will be able to know who participated.
You may also be contacted in a couple of weeks to complete another survey. At that time, you can choose whether or not to participate again.

What are the good things that can happen from this research?

There are no direct benefits to you or your child from taking part in this study, but the results will help us develop a reliable and valid survey that can be easily used in clinical settings.

What are the bad things that can happen from this research?

There is little to no risk to participating in this study. We can discuss any concerns that you might have with you.

Will you/your child be paid to be in this research study?

Each participant (both parent and adolescent) will receive a $20 Target or Kroger gift card.

Contact

To see if you qualify and then access the survey:
go to www.redcap.link/MAPS_Survey
or contact the study team:
decisionresearch@cchmc.org
513-517-7240

Study Doctor

Ellen A. Lipstein, MD, MPH
Adam C. Carle, MA, PhD
James M Anderson Center for Health Systems Excellence
Cincinnati Children’s Hospital Medical Center