$28 million grant is third-largest ever
Cincinnati Children’s has landed $28 million in federal funding to establish a data management and coordinating center for an agency that oversees researchers seeking cures for hundreds of rare diseases.
The center will be led by three senior scientists at Cincinnati Children’s: Eileen King, PhD, Biostatistics and Epidemiology; Maurizio Macaluso, MD, DrPH, director, Biostatistics and Epidemiology; and Peter White, PhD, director, Biomedical Informatics.
The five-year grant is from the National Center for Advancing Translational Sciences (NCATS), one of the National Institutes of Health. The first year of funding for our role was announced along with grants to 20 other research centers participating in the Rare Diseases Clinical Research Network (RDCRN).
The funds will be used to ensure that rare disease research studies are more efficient, effective, and more often lead to healthcare improvements. The coordinating center will facilitate studies involving thousands of scientists across the U.S.—and 22 other nations—by collecting, organizing, sharing and analyzing exploding amounts of “big data” about rare diseases.
