Wednesday, November 27, 2013
The Campaign Urging Research for Eosinophilic Disease (CURED), a not-for-profit foundation dedicated to those suffering from eosinophilic disorders, has donated nearly $157,000 to the Cincinnati Center for Eosinophilic Disorders (CCED) and the Registry for Eosinophilic Disorders (REGID), both based at Cincinnati Children’s Hospital Medical Center.
The donations followed the second annual CURED Patient Research Conference, which brought researchers, clinicians, and patients together to discuss cutting-edge advances in the field of eosinophilic disorders.
Eosinophilic disorders are characterized by high levels of immune cells called eosinophils in various parts of the body. These painful, inflammatory disorders render children unable to eat a wide variety of foods and often require that nutrition be obtained through amino acid–based elemental formulas rather than food. These conditions are rare, chronic, and require invasive procedures, such as endoscopy, for diagnosis and monitoring disease activity. Having an eosinophilic disorder is a daily struggle, one that can be especially difficult during celebrations and the holidays, when food is such a central focus of festivities.
CURED gives through supporting families, raising funds and awareness, and donating 100 percent of raised funds to research to find a cure for eosinophilic diseases. To date, CURED has donated more than $3 million to research.
“We are very thankful and fortunate for the amazing support of patients, families, and friends through CURED,” says Marc Rothenberg, MD, PhD, Director of the CCED and co-founder of REGID. “They are our inspiration and give not only today but every day in their efforts to further awareness and research.”
The CCED was the first center in the nation to bring together experts in various disciplines to tackle the challenges of eosinophilic disorders. Its team members are international leaders in diagnosing, treating and researching these rare disorders. The CCED is considered the most comprehensive clinic for these disorders, seeing both children and adults. It also is a dedicated research center, conducting clinical studies and trials and collaborating on basic and translational research studies.
REGID is a collaboration of medical centers, professionals, families, and individuals whose mission is to improve the knowledge, research, and outcomes for people living with eosinophilic gastrointestinal disorders. REGID is not only a national registry of people affected by eosinophilic gastrointestinal disorders but also a forum to enhance the connection of people to resources and research.
All of CURED’s donation to the CCED and REGID will be used to support and further research of these rare conditions.
Cincinnati Center for Eosinophilic Disorders:
www.cchmc.org/cced
Cincinnati Center for Eosinophilic Disorders Facebook page:
www.facebook.com/CCEDeos
Rothenberg Lab:
www.cincinnatichildrens.org/research/divisions/a/allergy-immunology/labs/rothenberg/default/
Rothenberg Lab Facebook page:
www.facebook.com/RothenbergEosinophilicLab
Division of Allergy and Immunology Research:
http://www.cincinnatichildrens.org/research/divisions/a/allergy-immunology/default/
Cincinnati Children’s Hospital Medical Center ranks third in the nation among all Honor Roll hospitals in U.S.News and World Report’s 2013 Best Children’s Hospitals ranking. It is ranked #1 for cancer and in the top 10 for nine of 10 pediatric specialties. Cincinnati Children’s is one of the top three recipients of pediatric research grants from the National Institutes of Health, and a research and teaching affiliate of the University of Cincinnati College of Medicine. The medical center is internationally recognized for improving child health and transforming delivery of care through fully integrated, globally recognized research, education and innovation. Additional information can be found at www.cincinnatichildrens.org. Connect on the Cincinnati Children’s blog, via Facebook and on Twitter.