I became interested in adherence research during graduate school when I saw the effects of non-adherence on children’s clinical outcomes. My graduate school mentor had a research program focused on adherence in cystic fibrosis treatment, a condition with a traditionally complicated treatment regimen. I was fascinated by the simple and complex barriers families experienced when seeking care for their children.
As a result, my research focuses on improving the health outcomes of children with chronic conditions, especially epilepsy. My team and I develop interventions to improve adherence to treatment and improve executive functioning skills, which can make adherence to a treatment plan easier.
I currently work as the director of the Center for Adherence and Self-Management at Cincinnati Children’s Hospital Medical Center. I am also a professor of Behavioral Medicine and Clinical Psychology at the University of Cincinnati College of Medicine.
In my laboratory, we look for ways to best measure adherence to treatment, identify adherence barriers, and then develop and test interventions to address adherence barriers. My research has also focused on the development of executive functioning interventions for teens living with epilepsy. I also have an interest in the development of patient-reported outcome measures, including health-related quality of life.
My team and I have developed many seminal measures in pediatric psychology frequently used in clinical care and research, including:
My early research was awarded with the following honors:
In my later career, I’ve continued to receive notable awards, such as:
I have a long-standing track record of National Institutes of Health (NIH) funding, include a pre-doctoral award (F32), a T32 fellowship, a K23 Career Development Award, and several R01s and R21s. I also serve as a co-investigator on many NIH- and Patient-Centered Outcomes Research Institute (PCORI)-funded grants.
BS: Duke University, Durham, NC, 1998.
MS: University of Florida, Gainesville, FL, 2001.
PhD: University of Florida, Gainesville, FL, 2004.
Internship: Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 2004.
Fellowship: Cincinnati Children's Hospital Medical Center, Cincinnati, OH, 2006.
Pediatric epilepsy: Adjustment to diagnosis, anxiety, depression, adherence difficulties
Behavioral Medicine, Epilepsy
Treatment adherence; health-related quality of life; patient-reported outcomes; executive functioning, adherence barriers, randomized controlled clinical trials
Clinical Psychology, Adherence and Self-Management
The neural basis of executive functioning deficits in adolescents with epilepsy: a resting-state fMRI connectivity study of working memory. Brain Imaging and Behavior: an international journal. 2021; 15:166-176.
Keeping people with epilepsy safe during the COVID-19 pandemic. Neurology. 2020; 94:1032-1037.
Supporting Treatment Adherence Regimens in young children with epilepsy and their families: Trial design and baseline characteristics. Contemporary Clinical Trials. 2020; 90:105959.
Pediatric epilepsy. Adherence and Self-Management in Pediatric Populations. 2020.
Pediatric epilepsy. Adherence and Self-Management in Pediatric Populations. 2020.
Pediatric epilepsy. Adherence and Self-Management in Pediatric Populations. 2020.
Pediatric epilepsy. Adherence and Self-Management in Pediatric Populations. 2020.
Current behavioral health and cognitive screening practices in pediatric epilepsy. Epilepsy and Behavior. 2019; 101:106214.
Epilepsy Journey: A proof of concept trial of a Web-based executive functioning intervention for adolescents with epilepsy. Epilepsia. 2019; 60:1895-1907.
Quality of life improves with integrated behavioral health services in pediatric new-onset epilepsy. Epilepsy and Behavior. 2019; 96:57-60.
Avani C. Modi, PhD, Charles D. Varnell Jr., MD ...2/25/2022
Avani C. Modi, PhD7/21/2021
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