Learning that you or your child has tuberous sclerosis can be overwhelming. But you’ve come to the right place. Regardless of the age of a patient, we can help. The Tuberous Sclerosis Clinic at Cincinnati Children’s is one of the world’s largest centers for treating this complex and misunderstood disorder. We care for nearly 600 children and adults, who come to us from across the nation and around the world.
Because tuberous sclerosis (TS) affects so many of the body’s systems, our program draws on the expertise of pediatric specialists from a variety of disciplines within our medical center. These specialties work to provide a holistic approach to your or your child’s care. And it makes care more convenient − you or your child can often be seen by multiple specialists on the same day.
We realize that any disorder affects the entire family. Our family-centered care approach includes your family in our care plan. In addition to providing exceptional physical care for you or your child, we also tend to the emotional needs of our patients and their families.
As a major center for research into tuberous sclerosis, we incorporate the latest scientific findings into our care. We were the first clinic in the nation to offer clinical trials of new treatments for TS, and we continue to offer highly promising and successful treatments to our patients.
Our nationally-recognized specialists provide online second opinions for families. They will review your case and answer specific questions about a diagnosis or treatment options. It’s easy, convenient and secure. Plus, you don’t have to leave home. Our case manager will collect your medical records and guide you through the process.